My Sister who suffers from what the Doctor’s call Pseudotumor cerebri (SOO-doh-too-mur SER-uh-bry) occurs when the pressure inside your skull (intracranial pressure) increases for no obvious reason. Symptoms mimic those of a brain tumor, but no tumor is present. Pseudotumor cerebri can occur in children and adults, but it’s most common in obese women of childbearing age. She now has to go in for a spinal tap to relieve the fluid build up in the brain to relieve the pressure. This makes the third one since she was diagnosed almost 16 years ago. She also has to see a heart Doctor because her blood pressure was very high, and when they checked her blood pressure on both arms one was high the other was normal. So now they suspect that she has a blockage somewhere.
My Sister also asked her Doctor about losing weight, and she told her that the best for her right now would be the stomach surgery. So she has a bunch of Doctor appointments today, and they are setting up her surgery. My Sister has gone through so much in the last few years that she needs a break. She had an Aneurysm and it finally shrunk down to where the Doctor’s could not find it anymore. That was a blessing. Then she was being treated for breast cancer. She went in and the test showed that it was pre-cancerous and they had to shrink it down.
Now we just do the tests and the spinal tap, and we go from there. Four years ago I was diagnosed with Pseudotumor cerebri also, but mine has not gotten to the point that my sisters’ has. Mine has put pressure on my optic nerve and then returned to normal. I have not have had any headaches since. I still go in and have the pressure on my optic nerve tested to make sure it is not getting out of control. Now we just wait until we get the tests back and see what the Doctor’s are going to do.
- Migraine Gems – Diagnosing Idiopathic Intracranial Hypertension (puttingourheadstogether.com)
- Me (watchmytransformation.wordpress.com)
- Pseudotumor Cerebri: Getting the Diagnosis Right (terirobert.typepad.com)